June 29, 2018
Woodmont Country Club, Rockville, MD

To benefit

About Cockayne Syndrome

Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, developmental and neurological delays, and a shortened lifespan. While CS children have been given a terrible lot in life, their lives are remarkable. One of the characteristics of CS is a jovial and joyful demeanor.

Meet one of our Cockayne Syndrome Children, Jamison Rose...

Jamison is the most loving, friendly, and full of life 7-year old you will ever meet. People always remark about what a delightful, social and outgoing child she is, truly a very special girl. Jamison was diagnosed at age 3-½ with Cockayne Syndrome.

At diagnosis, her mother was told: It has NO cures, NO treatments, and is 100% terminal.

 

Imagine being told that your child has a limited lifespan, and there is nothing you can do to help her; surely this is the most powerless feeling in the world for parents and family.

The National Initiative for Cockayne Syndrome (NICS) chooses to fight; fight for Jamison and all the children suffering from this devastating syndrome.


NICS is hosting The Bash for Cockayne Syndrome in the hopes of funding medical education to support early diagnosis and research needed to find a viable treatment for this disease. With your help, Jamison and children like her, can have the chance to live longer and fuller lives.


100% of your tax deductible donation will go directly to fund medical education and research related to CS through the National Initiative for Cockayne Syndrome. To visit their web site please click here.

 

Please click here to find out about
Sponsorship Opportunities

For more information contact Nikki Herson Cohen at:
info@bashforcs.org or (301) 908-3616

or click here to contact us
Please visit our 2018 sponsors



Sales: 855-513-2909
Service: 800-482-2506
15525 Frederick Rd., Rockville, MD 20855